Nerys Evans AM, Chair of the Cross Party Working Group for Epilepsy, hosted another fantastic turn out at The Senedd on Wednesday, 16th June, for the Epilepsy Aware at the Assembly. This event provided the opportunity for over 150 members of the three charities, Epilepsy Wales, Epilepsy Bereaved and Epilepsy Action, to meet their own and other Assembly Members to highlight epilepsy services in Wales.
Professor Phil Smith, Epilepsy Unit, UHW spoke with great passion about the recently launched Managed Clinical Network and Epilepsy Specialist Nurse Vicki Myson from UHW addressed the issues, concerns and importance of implementing the Epilepsy Service Directive, published by the Welsh Assembly in March 2009.
It was a wonderful opportunity to speak informally with members of the Welsh Assembly who listened with great interest to many of the stories, some good, some not so good, about the various degrees of epilepsy services received throughout different parts of Wales.
On behalf of all the members of Epilepsy Wales who attended we would like to thank the 26 Assembly Members who joined us for a ‘working lunch’. They are now all more aware of a condition that still needs more public awareness and, as long as we keep highlighting the need of specialist services, we will improve the epilepsy services in Wales.
If you came along on Wednesday, thank you for giving up your time, without your attendance the event would not have worked – so WELL DONE YOU!
pub. June 21st, 2010